Hello Everyone....Let me introduce myself, My name is Jessica and I am a 30 yr old married mother of 3. I have been going in a continuous downward spiral (in the health department) for probably the last 3 yrs. It started with my Endometriosis (eventually calling for a "full hysterectomy") in May 09. Then everything else just started to get worse.
I have always had headaches and migraines at least it feels that way. But in 02 they seemed to be almost constant so they put me on Topamax 100mg and that seemed to help alot until this past year. This past year I started getting headaches and migraines more often than not where now I am to the point where they are practically daily. Along with the headaches I have developed something with the tightening in my neck where I cant turn my head anymore with out it hurting. I have also been having vision problems more recently where my vision is not only blurry but it seems like now I am developing a bit of a "lazy eye" as well as eye pain where it literally feels like someone is shoving a fork right through the back of my eyeball. I also have IBS, nausea sometimes, no sex drive whatsoever...but the 2 most concerning things to me are definitely the things that I feel affect my life the most....
The 2 things that are affecting me the most are #1 I have this "tremor" or "Twitching" it's actually both now I don't even know if this is a symptom of Chiari but I am sure as hell hoping it is. This has wreaked havoc on my life....I literally cant sit still. I can't cuddle with my husband or children because I kick them or elbow them spontaneously. It has gotten much worse over time...at first it was just my hands and now it is every single part of my body....People actually stare at me which is definitley great...I mean even some people have the balls to say to me "so what up with the shaking". The other thing that has created the most problems in my life is the being tired ALL THE TIME...Seriously all the time I am not exaggerating here at all. I could and have slept for 3 or 4 days straight. I can wake up at 9 take a nap at 11 wake up at 2 lay down again at 4 get up at 6 and go to bed at 7 and wake up the next morning STILL TIRED and I dont mean tired like a cup of cofee will wake me up I mean I am not able to function because my eyes are closing and my head keeps falling.
The tired thing is absolutley affecting the rest of my life I always feel guilty for not being able to play or go out like all of the other moms and wives. Recently I have been having a really tough time dealing with that..I have often been thinking what if I wasn't here anymore would they honestly miss me or have I become more of a burden than a blessing to them?
And then finally a diagnosis came in for Chiari now I have am appointment with a neurologist for the 22nd and all I have been thinking about is all of the different scenarios that could take place. My husband on the otherhand has decided to ignore the whole situation until we go to the Dr. So I have been very lonely the past week and a half with just my mom to talk to on the phone...So hearing from other people going through the same thing as me would be a welcome change!
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